~ Kollyn's EEG came back normal!! Woohooo! The doctor told us it was altered awareness moments? We haven't seen another since then! I did however about fall out Saturday when we got a bill for his test and doctor visit!!

Kollyn

I have tried to keep this quiet but today we are taking Kollyn to Childrens to have some test run on him.  For well over a month we have noticed him doing a odd blinking thing. We first thought he was just making a game of a new trick.  Then I started noticing that he would get really still right before and stare at something. That's when we decided to take him to the doctor. Our doctor saw what I was seeing on Thursday and decided to send us to a neurologist.

I'm pretty calm today usually I'm a mess before we go to Children's for any testing. I'm okay with whatever is found. We can deal with it. We have made it through so much together as a little family and we can handle whatever this may be. I'm still hoping for it to just be a trick but either way its okay.

Summer time!!

This Summer has been so busy already. We have been swimming almost every day. Regan and Karly would stay there all day if I let them. Kollyn isn't really excited about it and about 15 mins into swimming he is ready to get OUT! I really thought he would like it more than he does maybe it's just his age.

 



Somewhere in that splash is Regan



Two of Ricky's aunts and his pawpaw have lots down at the river and so we have also spent some time there enjoying the water and all his family.  Ricky spent a lot of time on the river when he was growing up so he loves seeing the kids playing in the water like he did. I tried to get some good pics a couple of weekends ago but they just were working with me. Kollyn's face in some of them is just too funny!!

Cousins feeding the ducks

Kollyn looks thrilled, doesn't he?

 There is so much I enjoy about this time of year and I'm loving making memories with my sweet babies.  Happy Summer!!

Miracle League Baseball

Yesterday was the last game of the season for Miracle League. Regan had so much fun playing on the Cubs team this year.  I know he is going to miss it the rest of the Summer and we will too! The couple of games we missed he asked us all day if it was tball day.

Regan is Ready to play

Kollyn was not happy that he couldn't go play

Throwing the ball back in

Heading to 1st



My child rocking out while running the bases!



Regan's team

I just can't say enough about how wonderful it was playing somewhere that Regan was just like everyone else. He wasn't seen as anything other than just a kid playing ball.  Thanks to Mrs. Mary, Mr. Curtis and of course Preston for making this a great year for all of us!

Regan

This week at Kelly's Korner her SUYL is for children with special needs so I had to link up for this one!! I love meeting other families of children with Down syndrome and hope to meet some great families through this link up!!

This is Regan! He will proudly tell you he is six. We had no idea while we were pregnant that he had DS. A few hours after he was born we were given the news.  These last six years have had their challenges but they have also been amazing.

Regan loves playing all types of sports. He is a HUGE Alabama fan and has been known to ROLLLL TIDE at odd times. He plays t-ball for the Miracle League and loves it. Every day he asks if it's T-ball day. When we actually get to the game he catches one or two balls and then he goes to the dugout to wait on his time to bat! He is a mess!

I'm excited to meet some new families and hope you will leave me a comment so that I can come meet your family too!!

June 1st

Today is a mix of emotions day for me. Today, June 1st, was the baby that I miscarried due date.

To say that you get over something like losing a baby is completely wrong. Do you move on from it yes but you never get over it.  I still think about that sweet baby that we tried so long for. I was so excited to find out that I was pregnant. It had been a LONG three years of trying.

Happy two years my sweet ladybug. You were only with me for 11 weeks but I'll love you forever!

It's a time of the year that I always dread. It's a time of sweat,tears and lots of training. It's not for any kind of sporting event but the dreaded IEP meeting! For me it starts about March, when we are first notified that we will be notified of a time and date for the meeting. I start feeling that panic as soon as I see the worksheet where we are to list what we think are our child's strengths and weakness are, what we would like to see accomplished next year and any other concerns we have. I start sweating writing it all out this one page report turns into a term paper for me~ note cards, key points, references, rough draft, index and all just to fill out 5 or 6 questions.  I'm a mess! Then as we get closer I have to give Ricky a run down of what we (I) want to accomplish with this meeting. I give him quizzes! I'm up at night looking for ideas and programs that might help me feel more prepared. I feel all this pressure to make sure that I do all I can to to ensure that he has an appropriate IEP with good goals that will help him push to learn more but that he can still be successful with.

We are here in the last week now. Regan's meeting is Thursday and I already want to throw up just thinking about it. I never walk out feeling like I did the best I could for him and I'm pretty sure I will have the same feeling this year. But I can say that Regan has made tremendous progress this year. So what if he didn't meet all of his goals he did things that we never imagined he would do and that is what counts. 

Good luck with all your IEP's!!